My journey to TAF

After going through several combinations, a few of which had some unpleasant side-effects, I had finally settled on Truvada and Tivicay so when my physician recently suggested changing to Genvoya I was a little sceptical so asked if we could instead stick with Tivicay and change Truvada to TAF, to which she agreed.

Now two weeks since I changed over it feels safe to say that it is the best decision we have made regarding my care because the difference is visible within this short space of time. No more am I pacing the floor at midnight trying to relieve trapped wind or running to the bathroom on an odd morning to heave. My skin looks fresher with more colour to it and my energy levels are just as they should be. On other occasions when changing medication I experienced the dreams, sweating, fatigue etc in the first few weeks but not this time. That’s not to say this regime is for everyone but it certainly is for me.

In truth this was something I was more than sceptical about doing, to use the word apprehensive would also be an understatement yet sometimes in life it takes a bit of trust and faith, both of which I have reserves of for my physician. Everyone should be involved in their care, had I said “no this change isn’t for me I want to stay on my current regime”, my doctor would have respected that decision but sometimes people aren’t included in their care as much as they should be so I would say to anyone who has reservations about some aspect of their care, or treatment, to bring it up. Any reasonable doctor will have a reasonable conversation with you about and involve you in the process. It’s your care, your health, your opinion counts more than any other.

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It’s been a while

By Andrew Goyvaerts

@posmovingon

 

It’s been a few weeks since a blog was put out so a good starting point would be a brief catch up with everyone.

Positive Moving On are launching a nationwide peer support program next year which has been a monumental task but the groundwork is pretty much complete, Tony is optimising a few details, following this we will unveil the plan towards the end of 2016. Our main focus will be on rural support and addressing the existing inequality in services those living with HIV in a rural area find when compared to people living in an urban area and city. Following on from this, in¬†September, our “Island Connection Campaign” moves to N.I. while continuing to be promoted to audiences in England such as other HIV organisations and APPG events in the House of Commons. High with enthusiasm at the prospect of spreading this message further that will involve interviews, lobbying and hoping plain old common sense will prevail.

Finally I have spent a lot of the last month thinking about social media, its restrictions and it’s time consumption. People might wonder why I used the word restriction when platforms like Twitter and Facebook Pages have done anything but restrict social movements as well as business growth, the reason is that, for me, it is restricting through conformity, something that is not suitable to this job. Its time consumption means that I spend several hours per week replying to messages, reading material and, trying to conform.

So there it is in a nutshell, what have you been up to?